Tuesday, November 8, 2011

Too much Medicine

We took Rowan in to the hospital on Saturday- it's now Tuesday and he may be getting out today.

He was having some really severe seizures, Clonics, and was vomiting so much he couldn't keep any medications down, so he needed an IV as a way to get his medicine.

Last Friday Rowan had an EEG.  The results were read at MEG (Minnesota Epilepsy Group) and showed he has Infantile Spasms.  This type of EEG or seizure is extremely difficult, if not impossible to control.  The doctors decided to start Rowan on Depakote and on a very new medication called Vigabatrin.  The latter is quite a risky drug and Steve had to sign a consent form for them to administer it... can cause vision loss among other things.  Well, all are risky, I guess- the Depakote can cause significant liver damage...

Changes are being made to his Ketogenic diet- lowering Carnatine and adding in some oil.

Long story short- our baby is on loads of medicines.  (Keppra, Phenobarbital, Depakote, Vigabatrin, Carnatine, and CytraK) He's got a Valium suppository for emergencies, as well.

Please pray for Rowan; that he responds well to the medications and that they don't cause the adverse side-effects.

We'd sure appreciate it.



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