Monday, October 29, 2012

A peaceful weekend

We had such a nice weekend with the kids- both were, for the most part, delightful to be around.

We've declared Saturday to be 'Sweets Day' and Sunday to be 'Fun Day' at home. The sweets-baking isn't helping my waistline, but it is sure a fun thing to do with Lily.  I think we've all tried to focus more on having a good time together than on trying to cram as much cleaning and tasking as possible into one weekend.  Everyone is happier... and a little bit of dirt matters so little in the grand scheme of things.

Quote of the weekend from Lily: "When I pee will I see teeny marshmallows and chocolate pee?" said after drinking a cup of hot cocoa.  Don't worry, all- I cleared up her confusion:)

Rowan had a strong weekend. He was very vocal and practiced looking at lots of different things.  As I mentioned before, I'm super focused on helping his vision to improve. I've been reading the book, Little Bear Sees and have recently ordered items from Amazon; strings of yellow and pink lights, red mylar wrapping paper, a two-sided mirror.  I want to make sure everything he does is stimulating his vision and that we're focusing on bettering one of the abilities he DOES have. He may not walk. He may never say a word.  But he can see...

On that note, we're moving forward on having a Vagal Nerve Stimulator implanted in Rowan.  I received a form to sign and to fax back to get the actual device ordered.
These forms always take my breath away. No matter how many I receive. Ones like this remind me that, although Rowan is strong and had a good, fun weekend... He's still got a bad brain. He's still fragile and we do have a long road ahead.  I think both Steve and I are so good lately at loving our children deeply and in the moment- and at celebrating inchstones with Rowan, and I can only speak for myself, but sometimes I get so used to Rowan just being 'Rowan', I forget how serious things are. I am sure that sounds silly-because trust me, I remember he is sick.  The day-to-day and the fact that I HAVE to be accustomed to his condition, though, makes me forget things like this: 

Tuesday, October 23, 2012

a new bed for Lily

Better late than never on this one, I guess?

A couple months ago, I made this bed for sweet little Lily. This wasn't exactly prompted by the kindness of my heart and a desire to sweat in the heat of August at my favorite wood studio... rather it was an idea that popped into my head after about 6 strait months of her getting up in the middle of the night and coming to wake me up.  And even then, I was inches from buying a loft bed online.  Steve saved the day, though, and told me to simmer down, not click buy, and go to sleep. Then next day I had the idea to make her a bed.

All told, the frame of this bed cost us $80.  I worked for about 24 total hours on it. 

Lily loves it and no longer wakes us up, so I'd consider this one a success!!

 I found the plans at and Jim helped me build it for my girl.

Wednesday, October 3, 2012

Things and other stuff

I've been completely blown away by my kids the past couple of weeks.  Growth is all around; literally and figuratively.

Rowan is getting huge! He's seriously long, folks. If he could stand, Lily'd be in for it. Something's changing with this kid. His focus is ten times what it was a few months back, he is verbalizing really well and is doing a ton of mimicking. He is interacting with us consistently and is doing little things to show us he's almost reached the twos.  I don't know why I'm shocked by his recent growth and development, but I am. It makes me wonder what the future holds. Makes me want to do more and more for him.

And Lily! She is really something. She's learning things every day at her new school and her verbal skills are amazing. She seems to have grown up in the past few weeks. I kind of don't like it, and I don't think Steve does, either. I miss my little girl!  We can't stop her, though. For some reason her growing up scares me slightly... in the nicest way. I want her to slow down. I want her to stay where I can protect her.

Sheesh... I hope she wants to be my best friend and snuggle me until she is 20. or 30.

Here she is napping with Grandma this past weekend. Both were exhausted...