VNS and Rainy Days

I took Rowan to the Gillette Children's hospital last week so he could have his Vagal Nerve Stimulator implanted.
I was super hesitant about it- and honestly still am. I don't believe he needed it this soon, but it's done now. The whole thing just reminds me that I'm his advocate, and that I need to make sure I'm 100% comfortable with his care and the decisions that go along with it.
Everything has gone really well so far, though, and he is healing well and chattering all day and night.

Rowan and I drove up last Tuesday afternoon and stayed with Aunties Tessa and Ashleigh. That was fun for both of us. We got to hang out and eat tacos and have some ice cream

Tessa and I left early the next morning for the hospital. I got to go in with Rowan while they were prepping him for surgery and got to be with him when they put him under.

Here he is just out of surgery and in post-op.


And here's Row on some morphine:

While at the hospital, I got to meet with their Keto team. I'm so so excited to get back on track with his diet and the monitoring of that aspect of his care. It hasn't been well managed and I plan to make sure we don't slip through the cracks again.
I think some changes are in order regarding his care- but I'll need to be a tad patient and pragmatic. The right answers will come.


Rowan didn't like all of the wires and monitors and the laying around, but he did like his new weapon:)






Now for Lily:
We've spent some great days together lately. Girls' days!
Girls rule and boys drool; that's our motto...

We love to bake, we build habitats, she does science experiments, and she wrote a book at school.


On Saturday we had a special girls' day together. We decided to go outside in the morning to splash in puddles since it was raining.

 

Turns out it was freezing cold- so we went inside and had some cocoa:)